Yesterday I got an unexpected phone call from the intake worker for the Plastic Surgery/Craniofacial team at Children's Hospital of Los Angeles (CHLA) saying that they wanted to see us for an appointment! I thought it would be a while until we could get in. Since Ayla is still having trouble opening her mouth and feeding, I have been anxious to get to Children's to meet the craniofacial team.
Today's visit was mainly for initial assessment/intake of history. It did feel good to go forward with getting answers about her, if there are any. However, it did feel like I was getting back on the emotional roller coaster of, "she could have this, or she could have that, etc". I am so much better equipped, emotionally, to deal with what reality is. I was so much more "fragile" while we were in the NICU at UNM.
The next step is a team meeting at CHLA on Jan 17. She also has a CT scheduled on Jan 23 to assess the structure of her TMJs and mandible. Then, we go from there!
I did think that it was ironic that when I got off the elevator today to go to the Plastic Surgery dept, the dental clinic was to my left!
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2 comments:
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